“I’m Glad My Port Wine Stain Was So Dark!”

Three days after her latest laser surgery, Addy sang a solo in her school play while sporting the usual purple bruising that follows each treatment.

The color of her face never came up in the days between her surgery and her solo; honestly, I’m never quite sure if she’s oblivious to her darker face or if she’s aware and just doesn’t care.  (After 37 rounds of this, I’m guessing she’s blasé.). Sometimes she remarks on the difference in the mirror after a zapping, and sometimes she doesn’t. This time, no commentary.  So we didn’t say anything, either.  (Such is the eternal balancing act of a parent, right?  Making it clear that it’s an Open Topic, but not bringing it up prematurely and making an Issue of it…)

So, she hit the stage as “Mouse” in her school play based on the classic tale, “The Mitten”. She got to sing a solo, then scowl at the other animals who wouldn’t make room for the little Mouse in the Mitten.  (Yes, she enjoyed every moment on stage.)

Did I mention the process by which a kid ended up with a solo here? The teachers didn’t arbitrarily assign parts; instead, they first asked: “Okay, who wants to sing by themselves onstage at Art and Drama night?”  So Addy’s here because she wanted to put herself out there.  (A thousand points to the beautiful teachers and graceful families at her little school, for building an environment of safe creativity and self-expression; you know who you are, and we are grateful every day for you.)

I shot this video as a keepsake.  When Addy watched it for the first time, her eyebrows rose upon seeing the dark side of her face. “Oh! Wow,” she said, giggling. “Boy… Thank goodness my port wine stain was so dark, so I could look angry!”

Posted on May 29, 2015, in 3. Addy Stories & Experiences and tagged . Bookmark the permalink. Leave a comment.

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