Siblings & Classmates
We have three children: Addy is 7, Clarence is 5, and Eloise is 3. The younger siblings’ awareness of and reactions to Addy’s port wine stain are amusing: a combination of childhood oblivion and concerned observation.
When Clarence was younger, he’d point to Addy’s baby pictures: “That me!” “No, sweetie, that’s Adelaide.” “NO! That ME!” We’d point to the rather obvious port wine stain plastered on the baby’s face: “Clarence, look at that stain – you don’t have one of those, only Addy does.” He’d stare at it for a minute, think about it, then firmly shake his head. “No, that me.” Okay, dude.
Eloise did the exact same thing when she saw family pictures. It wasn’t until they were about 3 that either one showed any signs of recognizing the port wine stain’s existence in the picture and connecting it to their sister.
Two or three days after her latest surgery, which left her cheek quite bruised, we were sitting around the dinner table when Elly (age 3) suddenly stopped eating, stared at Addy for a long moment, pointed to her cheek and asked, “Addy, what that?” Yes, it took three years of life and three days of bruising for the youngest sibling to notice anything out of the ordinary.
When Clarence was three, he saw Addy’s bruised face after a particularly intense laser treatment and became quite concerned: “Addy! That blood!” She laughed it off and shrugged, “No, that’s just my port wine stain.” He stared. “No, Addy, that blood!” It took some work to convince him that his sister was fine, and that such bruising had, in fact, happened regularly in his first three years of life. He’d just never noticed it before.
Clarence recently told me, “I want to have a port wine stain, mom.” “Really? Why is that?” “Because port wine stains are good.” Awww! My mommy heart swelled with pride knowing that clearly, I’ve done such a stupendous job parenting tha– “And because Addy gets toys like her new Olaf toy and her new Olaf blanket when she goes to the hospital, and I want an Olaf blanket.”
Priorities, right? He just wants the goodies. I can’t blame him; that new Olaf blanket is pretty sweet, as you can see in the picture. (By the way, on that thought: A million thanks to the volunteers and donors who keep Children’s Hospital stocked with the awesome toys that comfort & distract kids during medical procedures; it’s stuff like that that keeps our Addy looking forward to her hospital trips!)
As far as classmates go, whenever Addy has a surgery, we prepare her for the fact that, because she’s going to school with a newly dark-purple face, people will probably notice it and ask her about it and that’s totally okay, because it means they’re concerned, and that’s awesome.
But recently, no one has asked. And I realized something – it’s old news already. She’s at a small school; all the K-12 class sizes are 10-20 kids each, she knows upperclassmen by name, and they know her. In other words, pretty much everyone in that building has seen her bruising before. She walks in with a purple face? Nothing new. She gets more double-takes when she leaves Children’s hospital, which makes sense, because those strangers have never seen her before. (In fact, one little girl in the lobby gasped excitedly, “Mom! Look! That girl has a painted face!” like it was the coolest thing she’d ever seen. I love kids.)
While familiarity may sometimes breed contempt, it can also breed boredom; in our case, that’s a very good thing. As long as Addy is small, surrounding her with the same people regularly for whom her suddenly-purple face is ‘nothing new’ minimizes the stares and questions she gets throughout her day. I will always be happy to expose her to the world, to empower her to answer strangers’ questions with grace, and to build her confidence in facing society with a unique face, but I’m also relieved that in her daily routine, she can relax among a few friends and family who know her face so well that there’s nothing left to ask.
Unless she comes home with a sweet new Olaf blanket and stuffed toy. Apparently, that’s enough to pique brother’s curiosity all over again.