Blog Archives
Port Wine… Sunburn?
Posted by Jennica
Today I walked the girls down to our local Dairy Queen – it was hot and humid and a perfect day for ice cream. We arrived sweating and flushed. Another customer pointed out to me that Addy might be getting sunburned.
I smiled to myself, knowing that it’s no sunburn, it’s only on one side of her face, and it won’t fade tomorrow. đ It felt nice to have it mistaken for a sunburn. Reminds me that we’ve made progress with those laser treatments – after all, when she was born, it was more ‘mask’ than ‘sunburn.’
(I didn’t correct the lady, I just smiled and nodded and laughed about the hot weather. I don’t mind some good-natured concern.)
“A Painting”
Posted by Jennica
(It’s been a while – sorry.)
Siblings. They’re as honest as every other kid out there.
Addy (who is now 5) just had a laser surgery, which makes her port wine stain darker and a bit blotchy with bruising. Clarence, her 3-year old brother, just noticed it – he pointed to the stain and said “That’s blood!” Addy corrected him nicely: “No, it’s not.” “Yes, it blood.” I interrupted: “No, buddy, Addy’s not bleeding.” “Yes, it blood.”
So Addy explained, “It’s my port wine stain from Dr. Zelickson.” (Close enough.)
Then she added (repeating what she had told me a few days earlier when we talked about going in for another treatment), smiling and touching her cheek delicately, “I pretend that this is a painting.”
Posted in 3. Addy Stories & Experiences
Tags: Grace, Perspective, Port Wine Stain, Treatments
The Tables Are TurnedâŚ
Posted by Jennica
I took my kids to the doctorâs office for a checkup recently. While I stood at the desk (in the super-quiet lobby area) filling out forms, Addy suddenly turned to me and asked in a loud voice âMommy! Why that girl not have any arms?â I froze. She jabbed her arm out to clearly point: âRight there! Why she not have arms?â
Well, this was a completely new experience for me. Ever since Addy was born, weâve experienced staring kids, curious adults, and parentsâ awkward reactions when their kid asked them loudly âHEY! MOM! Why does that girl have a RED FACE?â No problem; until recently, Addy was too young to hear the inquiries, and we know little kids are curious. We often just reassured the other parents with a smile, not sure why they felt so awkward around us. Itâs okay, weâre cool with it.
But that day in the waiting room, the tables were turned; suddenly, I was the parent who was terrified that my curious three-year-oldâs questions would be overheard by the girl who was, in fact, missing both arms, and I wanted to do anything to shut her up before I was branded as some backward, insensitive, ignorant lazy parent who canât even teach her kids to accept other human beings for what they are in our postmodern hypersensitive age of diversity! (*gasp*) What would people think?! ?
I halted her questions with an awkward combination of The Mommy Death Stare and a loud âshush!!â (yeah, smooth), muttering something about needing to sit down and wait âvery, very quietlyâ for the appointment. Go figure – the only place to sit down was right next to the young girl who, sure enough, was using her toes to leaf through the pages of the book she was reading, as there were no arms beyond the shoulders.
Then the girl looked up from her book with a soft smile and said quietly to me, âItâs okay, she can ask me anything she wants. Iâm used to questions.â  [âPHEW!  So she doesnât hate us. Good.â] I smiled and thanked her. She continued, âI donât mind it when little kids ask me. Itâs the older ones who arenât nice.â
Hmmm. Maybe thatâs why Iâve never minded kidsâ questions; until recently, itâs usually just been the young ones who have noticed and asked about the stain. So before I label us as the âconfidently proud and matter-of-factâ modern parents I thought we were, I have to admit that weâve never really been the target of any malicious teasing. Maybe thereâs an inner âshaken and insecureâ parent waiting to emerge with the right prodding? Probably.
At least now I understand better why parents silently freak out at their kidsâ noisy observations â theyâre afraid theyâll be branded as terribly incompetent parents. And, like the graceful young girl in the waiting room, Iâll reassure them that itâs okay to ask. No, I donât think youâre backward or insensitive or a bad parent. Even the most hypersensitive, postmodern parents have curious three-year olds…
Taming Mother Bear
Posted by Jennica
Last night we went out to eat at Noodles. It was dinnertime, so there were lots of families with kids. We found a table in the back, by a family with a couple of little girls who were somewhere between kindergarten and third grade. (I canât tell kidsâ ages, so thatâs a guess; older than Addy, still quite a bit younger than tweens.) While we approached and were getting settled, one of the girls noticed Addyâs face, still quite bruised from laser surgery. The girl caught her friendâs attention and gestured toward Addy. They stared wide-eyed. Then they started whispering furtively together; one kept touching her own cheek while they were discussing the sight.
There was something about their manner that brought back every memory of junior-high-female cattiness â that kind of âOhmygosh, did you SEE her outfit?â posturing, leaning forward to whisper together importantly, stopping to turn and stare, then ducking back into the gossip. And it infuriated me.
I could a) ignore them, b) obey my ursine maternal instinct and cross the eight feet between us to give each one a good smack upside the head, c) find a happy medium and just stand there glaring at them until they got uncomfortable, which would have looked weird in public but still been at least mildly satisfying in a passive-aggressive way.
Since Iâm not writing this from the local jail, you can assume I went (reluctantly) with Option A.
There were three factors that caused me to pick âself-controlâ over âmother bearâ:
1) The girlsâ parents were sitting right there, and would have noticed me. Darn it.
2) Addy was completely oblivious, so⌠if Iâm honest with myself, Iâll admit⌠no harm done there.
3) Thereâs a solid possibility that these were actually, truly, good girls. Girls who would never in a million years intend to hurt anyoneâs feelings. Girls who are too little to understand that their innocent whispering could be noticed, let alone misconstrued. Girls who have never seen a half-purple face before and are simply trying to figure out what might have happened to it by talking about it together. Girls who are just old enough to start innocently adopting those chattering female mannerisms that carry such baggage for those of us who survived junior high.
So, I sat down at our table and ate dinner like an adult. Every once in a while I glanced over to observe the girls, and they seemed to be normal. Iâm not sure exactly what that means (like how nasty the normal ones can get), but at least they werenât running around hitting old ladies or laughing at people in wheelchairs. So, maybe I can give them some room to be curious.
I guess Iâm learning that itâs a lot easier to handle the questions with humor, than with graceâŚ
Posted in 3. Addy Stories & Experiences
Tags: Encounters, Grace, Parenting, Perspective
A Pleasant Surprise
Posted by Jennica
We recently took a daytrip to a historic small town about an hour away. After walking around on Main Street for an hour or two on a ridiculously hot day, we popped into the local confectionary for ice cream. It was crazy busy in there, and while we were focusing on keeping the kiddos away from the colorful displays of treats, I heard the guy next to me in line say âAh, she has a birthmark!â I cringed slightly, pasted a smile on my face and looked down at Addy to see if she had heard. But before I could do or say anything, the guy continued: âJust like me!â
My head snapped up to look at him, and sure enough, this guy in his mid-thirties had a dark red stain on his face, and it was even bigger than Addyâs, wrapping around his shaved head. I broke into a smile: âPort wine?â  âYep!â âHa, thatâs exactly what she has! Did you ever do any treatments?â (No questions are âtoo personalâ after finding common ground like that!) He shook his head: âNah. I did one treatment when I was older, but thatâs it.â Then he smiled: âNow I really like having it on my face; you know, itâs something different, no one else has it.â
So hereâs a guy with a deep-red stain on his face, darkened a bit with age, wrapping around his skull, and heâs saying he likes it. Awesome. I wish Iâd had time to get tips from him on how to encourage that kind of confidence, but we were too rushed. Oh, well. He still made my day!
Have you ever run across someone who shared a particularly odd trait with you? Were you as excited as I was to find them?